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Tag Archives: advocacy
Emergency Room
It has been awhile since I have posted. I apologize for my silence; you can probably reason that it takes quite a bit to shut me up. And you would be right. But this paincation has been particularly brutal. And … Continue reading →
Posted in Advocacy, My Stage IV Life, Stage IV Musings
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Tagged advocacy, alone, breast cancer, Cigna, constipation, emergency contact, friends, impacted bowel, invisibility, invisible, invisible patient, Letrozole, Lupron, metastasis, metastatic breast cancer, Methadone, nerve ablation, nerve block, nuclear constipation, Oxycodone, pain, pain management, pain scale, Stage IV, stage iv breast cancer, support, Tamoxifen, Treatment, Twitter, Valium, vulnerability
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72 Comments
Progression
When I ended the call I stared at the screen looking for an app that I could consult for answers. But the reality? There was no app. I had just spoken with my oncologist and learned that Tamoxifen, the drug … Continue reading →
Posted in My Stage IV Life, Stage IV Musings
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Tagged advocacy, breast cancer, breasts, Diagnosis, disease progression, Femara, Letrozole, lumbar spondylosis, Lupron, metastasis, metastatic breast cancer, pain, pain management, PET/CT, Philosophy, progression, spondylosis, Stage IV, stage iv breast cancer, support, Tamoxifen, Treatment, tumor, Xgeva
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94 Comments
The SCAR Project: UPDATE
Overall, my meeting with Facebook to discuss my Change.org petition was really positive. Facebook’s representatives said they’re fully supportive of The SCAR Project and that they do allow mastectomy photos – but there’s clearly both internal and external confusion that’s … Continue reading →
The SCAR Project
I was benignly checking Twitter one day when I saw a tweet from Anne Marie Ginanni (Stupid Dumb Bread Cancer) that Facebook was taking down pictures from The Scar Project’s FB page. A further tweet by David Jay, the … Continue reading →
Harmonic Convergence
When the planets align in the breast cancer universe things get interesting. It has been an unprecedented four-five weeks. The first planet to get into position was that of oral arguments delivered to the Supreme Court of the United States … Continue reading →
Posted in Advocacy, Book and Article Reviews, Social Commentary
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Tagged advocacy, Angelina Jolie, Barron Lerner, biometrics, breast, breast cancer, breasts, Cancer Culture, clinical trials, D.C.I.S., Diagnosis, ductal carcinoma in situ, Information resources, language, language as power, mastectomy, metastasis, metastatic breast cancer, My Fabulous Boobies, Nancy G. Brinker™, Peggy Orenstein, Philosophy, pink ribbon, Politics, prophylactic mastectomy, Stage IV, stage iv breast cancer, stigma, support, surgeon, surgery, survivor, Treatment, vulnerability, William Halstead
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35 Comments
Paincation Redux
I’ve been on a two week paincation. I apologize that I forgot to take pictures of the great time I had. You know, of the television tuned into Game of Thrones and MSNBC, the Kindle versions of B.V. Larson sci-fi … Continue reading →
Posted in My Stage IV Life, Physicians
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Tagged advocacy, awareness, Diagnosis, facet joint injection, fluoroscopic-guided injections, fluoroscopy, Information resources, Marcaine, metastasis, metastatic breast cancer, pain, pain management, Stage IV, stage iv breast cancer, steroid, support, Treatment, vulnerability
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20 Comments
I Am . . .
The last in a series of memes honoring Nancy G. Brinker™ (unless she makes more headlines).
Posted in Advocacy, Breastploitation, Social Commentary
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Tagged advocacy, breast, breast cancer, Breast Cancer Awareness Month, breasts, Cancer Culture, frustration, Information resources, Komen, metastatic breast cancer, Nancy Brinker, pink ribbon, Pinktober, Politics, Stage IV, stage iv breast cancer, stigma, support, Susan G.Komen for the Cure, vulnerability
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5 Comments
Trust
Continuing my deep affection for the Komen organization with another meme.
Posted in Advocacy, Breastploitation, Social Commentary
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Tagged advocacy, awareness, breast cancer, Breast Cancer Awareness Month, Information resources, Komen, metastasis, metastatic breast cancer, Nancy Brinker, pink ribbon, Pinktober, Politics, Research, Stage IV, stage iv breast cancer, stigma, support, Susan G.Komen for the Cure, vulnerability
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12 Comments
64%
Posted in Advocacy, Breastploitation, Social Commentary
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Tagged 64% pay raise, advocacy, awareness, breast cancer, Breast Cancer Awareness Month, Cancer Culture, frustration, Information resources, Komen, metastatic breast cancer, Nancy Brinker, pink ribbon, Politics, Stage IV, stage iv breast cancer, Susan G.Komen for the Cure
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7 Comments
The Sarcastic Boob 
The SCAR Project: VICTORY!
Some weeks ago, I initiated a Change.org petition to address what I thought were problems with Facebook’s policy regarding images of mastectomy. A handful of images had been removed from The SCAR Project‘s page and the project’s founder, David Jay, … Continue reading →